Follow-up regarding Delaney Wade's Islit
diagnosis in 2019:

On Monday, June 28, 2021 at 3:29:42 PM UTC-5, _ wrote:

_ wrote a lot, see following link for details,
the replier including part of one sentence,
shown below:

https://groups.google.com/g/misc.health.diabetes/c/VROQh77bAjo/m/HpTPPHKQAAAJ

... improving my great Islit management success ...

My success, HbA1c steadily under 5.7 since
2013, time in range above 90%.

...

-If- Islit was totally predictable, as if Islit indivi-
duals had a fully functional pancreas, problem
solved, but Islit individuals DON'T HAVE A
FULLY FUNCTIONAL PANCREAS, and DON'T
have any way to accurately predict all endo-
genous activity impacting glucose levels, and ...

... DON'T have a way to accurately predict
what happens when sleeping, and DON'T
have a way to accurately predict/deal with
glucose variation from food/drink/exogenous
insulin basal & bolus dosages.

-If- Islit was totally predictable, NO ISLIT indi-
viduals would have ANY hypoglycemia and
NO ISLIT individuals would have ANY hyper-
glycemia.

Problem is, without a fully functional pancreas,
manual management of glucose levels entail-
ing all the unpredictability factors detailed above
and more are currently required with current state
of the art technology. Hopefully, Omnipod 5 will
improve on that, won't know 'til I get one.

Two examples of unpredictability in direct quotes
in links to comments from Islit individuals in pre-
vious posts:

September 13 2019 https://groups.google.com/g/misc.health.diabetes/c/TvCc9Fn5GR8/m/x7kMDSQnBQAJ

In an article about Hannah Giffin's
Insulinitis (Islit), near-total to total
loss of endogenous insulin, the fol-
lowing quote speaks to the death
of Marie Orechoff at age 27: https://www.mpacorn.com/articles/moorpark-native-aims-to-strike-out-type-1-diabetes-with-bowling-fundraiser/

Quote [with clarifying insert, not
part of original quote, included
in brackets]:

"This year’s Bowling for a Cure,
set for Sat., Sept. 14 at Harley’s
Bowl in Simi Valley, will be dedi-
cated to the memory of Marie Ore-
choff.

Orechoff, a 27-year-old Moorpark
native, lost her life this summer
to Type 1 diabetes [Islit].

“She did nothing wrong. She was
living her life and managing her
disease, but this disease is

unpredictable

and no matter how hard we try,
things happen that are outside of
our control,” Giffin said. “This
could happen to anyone. Stories
like Marie’s rarely get shared,
but this is our reality.”

~~~

June 24 2021 https://groups.google.com/g/misc.health.diabetes/c/T3kLnEXiYkE/m/8NZkskCfBgAJ

https://www.wbir.com/article/news/local/five-at-four/teenage-crossfit-athlete-battles-type-1-diabetes-inspires-others/51-11be50be-5543-4b99-80af-0916d666ac39

Delaney Wade ... agrees with my perspective on
Islit unpredictability as indicated in the following
quote / excerpt:

"... It's a roller coaster, to be honest. My sugars,
they'll be low, high, good, and it can be up and
down, but it's not like a bad roller coaster," Wade
said. "You just can't really predict it. It's really not
predictable." ...

- - -
July 11 2021

Putting in the Work: 15-Year-Old
Delaney Wade Manages Islit https://morningchalkup.com/2021/07/11/putting-in-the-work-15-year-old-delaney-wade-manages-type-1-diabetes-qualifies-for-the-crossfit-games-teen-division/
- - -

... In 2019, Wade finally went to the doctors and
was diagnosed with Type 1 Diabetes [Islit]. That
day, her blood sugar levels were in the high 600s,
which, according to her doctor, should have landed
her in the ICU.

... “It’s a rollercoaster,” adds Bruce (Delaney's dad).
“Trying to pattern it and track it, and we’ve done well
considering, but trying to understand what causes
highs, what causes lows… we know carbs cause
highs, but if you’re lifting heavy, at a slower pace, ...

... then you tend to go up. If you are doing a lot more
cardio, fast-paced stuff, it tends to fall.”

~~~

Another recent post with extensive elaboration
about Islit unpredictability, from Courtney Pitson,
who's had Islit since age 2, for the last 21 years: https://groups.google.com/g/misc.health.diabetes/c/rrCAgX5qr04/m/X54QFB2bAQAJ

... “There’s a projected idea that being [an Islit indivi-
dual] is okay, that it’s not that hard, but it’s actually
really hard. I wish that people knew how hard it is
and how it really does change your life forever.”

/~* - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -
/~* Diabetes Bubble / Diabetes Bubble Burst
/~* https://prohuman.net/diabetesbubblediabetesbubbleburst.htm |
/~*
/~* C.ure I.nsulinitis A.ssociation
/~* https://prohuman.net/cureinsulinitisassociation.htm
/~*
/~* Glucose Anomalies Research regarding
/~* Potential Cures / Improvements in Treatments
/~* https://prohuman.net/glucoseanomaliesresearch.htm
/~* - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

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